Transforming Healthcare with Qualitative Research

Drawing on the knowledge and experiences of world-renowned scientists and healthcare professionals, this important book brings together academic, medical and health systems accounts of the impact of applying qualitative research methods to transform healthcare behaviours, systems and services. It demonstrates the translation of tried-and-tested and new interventions into high-quality care delivery, improved patient pathways, and enhanced systems management. It melds social theory, health systems analysis and research methods to addressreal-life healthcare issues in a rich and realistic fashion. The systems and services examined include those affecting patient care and patient and professional wellbeing, and the roles and responsibilities of people providing and receiving care. Some chapters delve deeply into the human psyche, examining the very private face of health and illness. Others concentrate on public health and how people’s needs can be met through health promotion and new investments. From real-time case studies to narratives on illness to theories of change, there is something here for everybody. Transforming health systems needs ingenuity – and the drive of individuals, the staying power of systems and above all the involvement of patients. Full of novel ideas and innovative solutions from around the world, all underpinned by qualitative methods and methodologies, this book is a key contribution for advanced students, practitioners and academics interested in health services research, research methods and the sociology of health and illness.

Part 1 Ideas 1.Introduction: Why this book? Frances Rapport and Jeffrey Braithwaite 2.Qualitative Evidence Synthesis and Conceptual DevelopmentNicky Britten Chapter 3 The Life-Project of Personal Wellbeing: Modern healthcare and the individuality of healthNigel Rapport Chapter 4 Socio-Narratology and the Clinical Encounter Between Human BeingsArthur W Frank Chapter 5 Interrupted Body Projects and the Narrative Reconstruction of SelfAndrew C Sparkes Chapter 6 The Fourth Research Paradigm: Activating researchers for real world needFrances Rapport and Jeffrey Braithwaite Part 2 Systems Chapter 7 Slack Resources in Healthcare Systems: Waste or resilience?Tarcisio Abreu Saurin and Dayane MC Ferreira Chapter 8 Using Qualitative Methods to Understand Resilience in Complex SystemsZeyad Mahmoud, Kate Churruca, Louise A Ellis, Robyn Clay-Williams and Jeffrey Braithwaite Chapter 9 Qualitative Assessment to Improve Everyday Activities: Work-as-imagined and work-as-doneRobyn Clay-Williams, Elizabeth Austin, Jeffrey Braithwaite and Erik Hollnagel Chapter 10 Narrativizing Cancer Patients’ Longitudinal Experiences of Care: Qualitative inquiry into lived and online melanoma stories Klay Lamprell, Frances Rapport and Jeffrey Braithwaite Chapter 11 Look the Other Way: Patient-centred care begins with care for our physiciansKlay Lamprell, Frances Rapport and Jeffrey Braithwaite Chapter 12 Resilient Healthcare in Refractory Epilepsy: Illuminating successful people-centred carePatti Shih, Frances Rapport, Janet C Long, Emilie Francis-Auton, Mia Bierbaum, Mona Faris and Robyn Clay-Williams Part 3 Solutions Chapter 13 Sensemaking as a Strategy for Managing Uncertainty: Change and surprise in hospital settingsHolly J Lanham, Jacqueline A Pugh, David C Aron and Luci K Leykum Chapter 14 Simulation to Solve Health System ProblemsMary D Patterson and Ellen S Deutsch Chapter 15 Cross-Boundary Teaming to Establish Resilience Among Isolated ‘Silos’Kyota Nakamura, Shin Nakajima, Takeru Abe and Kazue Nakajima Chapter 16 "What on Earth Is Going on and What Should I Do Now?" Sensemaking as a qualitative process Kate Churruca, Louise A Ellis, Janet C Long and Jeffrey Braithwaite Chapter 17 Deep Inside the Genomics Revolution: On the frontlines of careStephanie Best, Janet C Long, Elise McPherson, Natalie Taylor and Jeffrey Braithwaite Chapter 18 Much More Than Old Wine in New Bottles: Soft Systems Methodology (SSM) for healthcare improvementHanna Augustsson, Kate Churruca and Jeffrey Braithwaite Chapter 19 Conclusion: On progress, directions and signposts to a transformed healthcare systemJeffrey Braithwaite and Frances Rapport

Frances Rapport is Professor of Health Implementation Science at Macquarie University’s Centre for Healthcare Resilience and Implementation Science and holds an Honorary Chair as Professor of Qualitative Health Research at Swansea University’s Medical School, UK. She currently leads a team of Implementation Scientists examining new models that can successfully underpin the translation of research outcomes into practical solutions to improve healthcare service delivery. Jeffrey Braithwaite is the Founding Director of the Australian Institute of Health Innovation, Director of the Centre for Healthcare Resilience and Implementation Science; and Professor of Health Systems Research, Faculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, Australia. He is President Elect of the International Society for Quality in Health Care and a member of multiple groups of the World Health Organisation and the OECD as well as holding visiting professorships and international senior fellowships in six other Universities and think tanks in Europe and Japan.