Routledge Handbook of Genomics, Health and Society

The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an outline of emerging areas of research. Key themes addressed include the way genomic based DNA technologies have become incorporated into diverse arenas of clinical practice and research whilst also extending beyond the clinic; the role of genomics in contemporary ‘bioeconomies’; how challenges in the governance of medical genomics can both reconfigure and stabilise regulatory processes and jurisdictional boundaries; how questions of diversity and justice are situated across different national and transnational terrains of genomic research; and how genomics informs – and is shaped by – developments in fields such as epigenetics, synthetic biology, stem cell, microbial and animal model research. Chapter 13 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. https://www.routledgehandbooks.com/doi/10.4324/9781315451695-13 Chapter 28 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. https://www.routledgehandbooks.com/doi/10.4324/9781315451695-28

1 Introduction: Genomics, Health and Society, Sahra Gibbon, Barbara Prainsack, Stephen Hilgartner and Janelle Lamoreaux Section One: Genomic/DNA-based Technologies in the Clinic and Beyond 2 Introduction, Sabina Leonelli 3 Biomedicalisation in the Postgenomic Age, Catherine Bliss 4 Genomics and Big Data in Biomedicine, Sabina Leonelli and Niccolo Tempini 5 Mainstreaming Genomics and Personal Genetic Testing, Susan Kelly, Sally Wyatt and Anna Harris 6 Bringing Genetics into the Clinic: The Evolution of Genetic Testing and Counselling, Ilana Lowy 7 From Quality Control to Informed Choice: Understanding "Good Births" and Prenatal Genetic Testing in Contemporary Urban China, Jianfeng Zhu and Dong Dong Section Two: Genomic Technologies in the Bioeconomy 8 Introduction, Claire Marris 9 Limits to Biocapital, Margaret Chiappetta and Kean Birch 10 Gendered Bioeconomies, Janelle Lamoreaux 11 Genomic Hope: Promise in the Bioeconomy, Paul Martin 12 Neoliberalism on Drugs: Genomics and the Political Economy of Medicine, Edward Nik-Khah 13 The Value of the Imagined Biological in Policy and Society: Somaticizing and Economising British Subject(ivitie)s, Martyn Pickersgill 14 Responsible Research and Innovation (RRI), Ulrike Felt Section Three: Current Challenges in the Governance of Medical Genomics 15 Introduction, Stephen Hilgartner 16 The Human Genome Project and the Legacy of its Ethics Programs, Stephen Hilgartner 17 Patenting, Shobita Parthasarathy 18 Genomic Platforms and Clinical Research, Alberto Cambrosio, Etienne Vignola-Gagné, Nicole Nelson, Peter Keating, Pascale Bourret 19 Diagnostics, Stuart Hogarth 20 Collection and Protection of Personal Health Data, Edward Dove 21 In CRISPR’s World: Genome Editing and the Politics of Global Science, Ben Hurlbut Section Four: Diversity and Justice 22 Introduction, Sahra Gibbon and Barbara Prainsack 23 Disability and the Challenge of Genomics, Jackie Lee Scully 24 Eugenics and Enhancement in Contemporary Genomics, Silvia Camporesi and Giulia Cavaliere 25 Genomics and Insurance, Ine van Hoyweghen 26 Power Asymmetries, Participation, and the Idea of Personalised Medicine, Barbara Prainsack 27 Excavating Difference: Race in Genomic Medicine, Sandra Lee 28 Genomics in Emerging and Developing Economies, Duana Fullwileyand Sahra Gibbon Section Five: Crossing Boundaries 29 Introduction, Janelle Lamoreaux 30 Epigenetics, Margaret Lock 31 Environmental Epigenetics and Suicide Risk at a Molecular Scale, Stephanie Lloyd and Eugene Raikhel 32 Stem Cells, Global Cells, Local Cultures, Jennifer Liu 33 Co-producing Animal Models and Genetic Science, Carrie Friese 34 Making Microbiomes, Amber Benezra 35 Behavior Genetics: Boundary Crossings and Epistemic Cultures, Nicole Nelson and Aaron Panofsky 36 Synthetic Biology, Jane Calvert, Dominic Berry and Deborah Scott

Sahra Gibbon is Reader in Medical Anthropology in the Anthropology Department at University College London, UK. Barbara Prainsack is a Professor at the Department of Political Science at the University of Vienna, Austria, and at the Department of Global Health & Social Medicine at King’s College London, UK. Stephen Hilgartner is Professor of Science & Technology Studies at Cornell University, USA. Janelle Lamoreaux is Assistant Professor of Anthropology at University of Arizona, USA.