The protagonist of this book is called Roberta Maria, a four years old girl who has lived with a very rare genetic pathology since birth.
Through her message, which her father and her family try to tell, many co-protagonists are revealed in the story, representing all people with disabilities and some extras, which by directing the lives of the protagonists, automatically become unwitting directors.
The story begins a few weeks before Roberta's birth and, retracing the months marked by hospitalizations, relationships with health workers and institutions, victories and defeats, and it ends, albeit with a future to be imagined, with a thought of hope that verges on the utopia. The narrative includes a first section focused on the purely health part, a central portion that is integrated with the first, elements that from individuals aim to become a common heritage, and a final segment, which describes the life of a family that lives daily with disability. , during the period of the health emergency due to the covid-19 pandemic.
