Diagnostic errancy is devastating for individuals with rare diseases and their families. To understand her son’s differences, Mother Lioness relentlessly travels the African savannah.
ABOUT THE AUTHORS
Medical secretary, Sonia Goerger has been welcoming and meeting with numerous patients regarding genetics for many years. This interaction inspired her to create this series of books on “Children of Genetics.”
The books within this collection address challenges these patients may face on a daily basis, in simple terms and with endearing characters.
Graphic designer for several years, Elodie Garcia is an author and illustrator of children’s books and comics. The delicacy of her line allows her to approach, in a gentle way, difficult subjects. By illustrating the “Children of Genetics” book series, she hopes to help families facing a rare diseases.
The ARGAD Association (Association for Research in Genetics and Support for Families and Professionals of Dijon-Bourgogne) is a non-profit association under the 1901 law, created in September 2010. ARGAD engages in numerous activities: Improving reception and care conditions for patients with rare diseases in Burgundy, within the Genetics Centre of Dijon CHU, Raising awareness among health professionals in the Burgundy region, and amongst the general public regarding rare diseases, Contributing to a better and improved training of health professionals involved in rare diseases, And, supporting clinical and biological research activities in the field of genetic mutations associated with abnormalities in development and intellectual disabilities in Burgundy. To support the ARGAD Association and its’ mission: http://www.translad.org/faire-un-don/don.html
